SARD Stories

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SARD Stories

Founded on the principles of advocacy:

SARD Stories consists of a Spotify podcast and various articles written and hosted by members of the Student Advocates program.

SARD Stories covers any topic related to rare diseases, including experiences from rare disease patients, their families, caretakers, and medical providers, the latest medical innovations, upcoming dates for the rare disease community, and work other rare disease non-profits have been doing.

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Interested in creating your own episode for our podcast, or writing an article?

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Toddler Treated for OTC with an Innovative Gene Therapy

By Andrew Xia A 14-month-old boy, Tomas, has recently become the first patient ever to receive a groundbreaking gene therapy treatment...

6 days ago1 min read

FDA’s Recent Grants Boost Rare Disease Research and Treatments

FDA’s Recent Grants Boost Rare Disease Research and Treatments

Written by Harper Winslow The FDA has made significant strides in advancing rare disease research by recently awarding $17.2 million...

Oct 4, 20242 min read

Rare Disease Day 2024

Rare Disease Day 2024

Written by Sandrea Delgado Rare disease day is celebrated annually on the last day of February to serve as a reminder of the challenges...

Feb 9, 20241 min read

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