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Our Projects
Although we focus on rare disease advocacy, our projects aim to broaden support for all hospital patients.
Our Projects
Our integrated approach to supporting rare disease patients embodies compassion, empathy, solidarity, and creativity. The "Connections Project" builds a supportive community, fostering empathy, resilience, and hope by bringing individuals together to share experiences and draw strength from one another. Meanwhile, our "Letters and Arts Project" celebrates the transformative power of creativity and human connection, uplifting patients through heartfelt letters and artistic expressions. Finally, our "Care Packages Project" epitomizes our commitment to providing practical support and comfort, ensuring that rare disease fighters feel seen, valued, and supported throughout their journey.
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