Emily is a 16-year-old junior at Lincoln Sudbury Regional High School. Emily founded SARD in the fall of 2023 when she was 15 years old in memory of her father and grandfather who both passed away from rare forms of melanoma. While at SARD, Emily aims at creating a more equitable space in heath care for those facing rare diseases, as well as empowering students like her to be the grassroots of feasible change. Emily loves to read, play tennis, hang out with friends, and play with her dog. In the future, Emily hopes to attend college to learn more about business and management, as well as continue to work on SARD.

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Since 2023, Emily has been committed to being a leader, creating a transparent and positive environment. She works to create and maintain the website and plan new initatives with the team. 

​Kenzie is a 18 year-old senior at Lincoln Sudbury Regional High School, and is currently committed to Georgetown University to study international relations in the fall of 2025. She recently recovered from Complex Regional Pain Syndrome (CRPS), so being a part of SARD is an opportunity for her to support others with rare diseases through the same challenges that she once faced. In her free time, Kenzie loves to ski, spend time with her friends, family, and dog. Kenzie is passionate about pursuing a career in international relations and continuing her education at law school.

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Since 2023, Kenzie's communication skills have been essential to coordinating our chapters both domestically and internationally. She works to organize our meetings with new and existing members, acting as our frontline to onboarding members

Addie is an 18-year-old senior at Northfield Mount Hermon School, and is currently committed to UMass Amherst to study neuroscience in the fall of 2025. She joined SARD after stalking the social media from afar and deciding to reach out (you should too!). She has spent a lifetime learning the ins-and-outs of being a patient. In her free time, you’ll find her attempting to ski or hanging out with her dogs!

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Since 2025, Addie has been an integral part of our team and is a pleasure to work with. Her input has been vital to planning successful initiatives. Addie is always finding donation drive and fundraising opportunities for our volunteers to help out with and to aid SARD in succeeding as a whole.

​Ansley is a 21 year-old junior at Washington University, Saint Louis, majoring in genomics and computational biology. After working on complex rare diseases cases in her research lab and hearing patient stories in her genetics course, she developed a strong passion for advocating for the rare disease community. Looking to make a greater impact, she joined SARD to reach a broader community and actively support this student-led initiative. In her free time, Ansley enjoys spending time with her friends and family, trying new cafes, and making pottery. As an aspiring physician, she hopes to attend medical school after graduating college and continue advocating for underrepresented patients

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Since 2025, Ansley has been very important to our mission, especially in outreach to potential care package recipients. Her attention to detail and dedication while planning our initiatives has greatly strengthened our impact and ensured everythin is thoughtfully prepared.

Andrew is a 17 year-old junior at Lincoln Sudbury Regional High School in Subdury, Massachusetts. Andrew is interested in giving back to his community and spreading positivity, so he joined SARD to continue helping others. His hobbies include playing the cello, running, and doing math. Andrew is not sure what he wants to do in the future, but he hopes to change the world for the better.

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Since 2023, Andrew has contributed to SARD's success by coordinating and organizing our 90+ volunteers, helping to create an environment of both positivity and dedication. He also plays an essential role at his local chapter at Lincoln Sudbury Regional High School, where he continues working hard whether it is baking for a fundraiser or helping write articles for SARD Stories. 

Emily is a 17 year-old senior at Westford Academy in Westford, Massachusetts, and is currently committed to Smith College where she plans to play on the women's tennis team. She joined SARD's Letters and Arts project due to her dedication in providing support and awareness for underrepresented groups such as the rare disease community. In her free time Emily enjoys helping out at her local senior center, as well as playing tennis and drawing. Emily finds interest in the medical field and hopes to pursue her future career in that area.

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Since 2023, Emily has worked hard as a project director, as well as the president of her chapter at Westford Academy - making meaningful contributions to SARD and advocating for those within the rare disease community.

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Julia is a 17 year-old junior at Lincoln Sudbury Regional High School in Sudbury, Massachusetts. She joined SARD to share support and spread awareness for children and adults facing rare diseases. Julia is passionate about helping others, and she enjoys working at the children's center at her local health club. She also enjoys playing soccer. Julia is interested in youth psychology and hopes to pursue this interest in college and beyond. 

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Since the fall of 2024, Julia has worked on SARD's social media pages, focusing on promoting awareness as well as SARD initiatives. She also plays a key role at her local chapter where she helps to organize fundraisers and make cards and care packages for Boston hospitals.

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